CAR-T and ME
A Patient’s Journey — Don May’s video diary of CAR-T cell therapy
“I'm Don May. In 2021, after years of battling Non-Hodgkin lymphoma, I underwent CAR-T cell therapy. I decided to document the experience as it happened — from preparing for treatment, through CAR-T infusion and hospitalization, to recovery afterward.”
“My hope is simple: that seeing what one patient actually experienced will make the road ahead a little less unfamiliar.”
— Don May
New here? Start with these three episodes
Considering CAR-T therapy or caring for someone who is? These videos tell my experience before, during and after CAR-T treatment, followed by what life has been like years later.
Eps 2 What is it like DURING CAR-T?
“This covers my hospital stay where I received my CAR-T infusion until I was released ten days later.”
Eps 3 What is it like AFTER CAR-T?
“This covers my experiences from the time I left the hospital after CAR-T until the day I had my first PET scan a month later.”
The day-by-day diary
Short videos Don recorded as it happened — before treatment, in the hospital, and after he came home.
- Before CAR-T7 videos · from T-cell harvesting to the day before
- In the hospital9 videos · infusion day through heading home
- After CAR-T12 videos · recovery at home and first scans
- Relax3 videos · a minute or two of calm
- Find supportOrganizations for patients & caregivers
- 5 years since CAR-TNew videos coming this month
Coming this month
5 years since CAR-T
Don is adding new videos this month to mark five years since his CAR-T treatment. They will appear here when they are posted on his channel.
Subscribe on YouTube to see them first.