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CAR-T and ME — A Patient’s Journey

Find Support

Trusted organizations that help people with lymphoma and other blood cancers, people going through CAR-T, and the family and friends caring for them.

In an emergency, call 911.

If you are in emotional crisis, you can call or text 988 (988 Suicide & Crisis Lifeline), available 24/7.

Don volunteers with Blood Cancer United (formerly The Leukemia & Lymphoma Society). These links go straight to each organization’s own website. Phone numbers and hours were checked on each organization’s website on October 1, 2026; hours can change, so please check their site.

  • Blood Cancer United (formerly The Leukemia & Lymphoma Society)

    Free Information Specialists who can help you understand a blood cancer diagnosis and treatment, plus resources for caregivers and a peer program (First Connection®) that connects you with someone who has been through a similar experience.

    Information Specialists: 1-800-955-4572

    Monday–Friday, 9 a.m.–9 p.m. ET. After hours you can leave a message for a call back.

    Talk to an Information Specialist

    Peer-to-peer support (First Connection®)

    Resources for caregivers

    Pre-CAR T-cell therapy travel assistance program

  • CAR T & Me (cartandmeinfo.com)

    A searchable database of CAR T resources from patient advocacy groups, for patients considering or going through CAR T-cell therapy and their care partners. Don recommends it. It was created by Kite, a Gilead company that makes CAR T therapies, together with patient advocacy leaders.

    Search CAR T resources

  • Lymphoma Research Foundation

    A support team for lymphoma questions and resources, a Lymphoma Support Network to connect with someone who has been through a similar experience, and Patient Aid Grants for treatment-related expenses.

    Support team: 800-500-9976

    Lymphoma Resource Center

    Lymphoma Research Foundation website

  • American Cancer Society

    A 24/7 cancer helpline with trained specialists who answer questions and connect patients, caregivers and family members with services and resources.

    24/7 cancer helpline: 1-800-227-2345

    Phone: any time, day or night. Live chat on weekdays.

    Support programs and services

  • Cancer Support Community

    A free Cancer Support Helpline staffed by navigators and resource specialists who help cancer patients and their loved ones find guidance, resources and support.

    Cancer Support Helpline (toll-free): 888-793-9355

    Monday–Thursday 9 a.m.–7 p.m. ET; Friday 9 a.m.–6 p.m. ET

    About the Cancer Support Helpline

  • CancerCare

    Professional oncology social workers who provide free emotional and practical support for people with cancer, caregivers, loved ones and the bereaved — including support groups by phone, online and in person.

    Hopeline: 800-813-HOPE (4673)

    CancerCare website

  • Imerman Angels

    Free one-on-one support: they match you with a “Mentor Angel” — a trained volunteer survivor or caregiver who has been in your shoes.

    Find a Mentor Angel

  • NMDP (formerly Be The Match)

    Free patient navigators who listen, answer questions and offer support for patients and families facing a blood or marrow transplant.

    Patient Support Center (call or text): 1-888-999-6743

    NMDP Patient Support Center

  • National Cancer Institute — Cancer Information Service

    The U.S. government’s cancer information service; specialists answer cancer-related questions by phone, chat and email.

    Cancer Information Service: 1-800-4-CANCER (1-800-422-6237)

    Monday–Friday, 9 a.m.–9 p.m. ET

    Contact NCI

This list is not an endorsement of any treatment. For questions about your own care, talk with your care team.